After reading your post, I may have some information that may help. Lee & Smith are wonderful attorneys that can help your husband along with the process, as I don't know all the circumstances my advice is to call them right now they have folks on call 24hrs a day, they will come to you, no need to waste gas.
As for SSI there is a lady by the last name of Greene she was based out of Albemarle lat time I heard as it has been over a year since I lived in NC, and over 9 years since the last person I sent to her. But there are also others that can and will fight for your husband everyone is turned down but when a lawyer is involved they for some reason change there mind. The great news is keep appealing there decisions, when it is approved they will back pay all that was rightfully belonging to your family. I have 2 children on SSDI right now. When my husband was fighting for his disablitily they in fact back paid him as I kept on it. Don't give up! All of gods children regin victory in the end! May God speed comfort to your family soon!